I’m not sure how else to describe the last 7 days other than to say that I’ve been in a haze.
A haze of gratefulness, that I finally have a diagnosis.
A haze of side effects, as my body adjusts to my medication.
A haze of information, as I learn about a disease I had not even heard of, six months ago.
Last Monday, I was tentatively diagnosed with Myasthenia Gravis. The diagnosis was confirmed over the next several days, as I responded to the treatment. Myasthenia Gravis is a chronic disease that causes muscles to tire and weaken easily. Currently, the muscles being effected are in my eyes (causing my vision problems) and in my throat (making it hard for me to swallow). It can attack different muscle groups at different times and also comes and goes in severity. While there are treatment options for the symptoms, there is no cure at this time.
The treatment I’m on right now is helping with my vision. While I don’t have my vision back 100% of the time, I have it back for the majority of the day. And that is VERY good news.
I need to carefully manage my exercise and avoid over-exertion. A relatively short and slow run on Monday caused my symptoms to come back in full force. I didn’t start feeling better until the end of the day yesterday. While I’m convinced that being in the best shape possible can only help me, I can’t wear out my body. In addition to the fact that I’ll be flat out for a couple of days, overdoing it puts me at risk of respiratory distress. If you know me, you know that I don’t like the phrase, “take it easy.” But it seems that I need to do just that. Exercise is off the table until the medication helps me stabilize. Then I can begin again, in small doses.
I’m researching diet, vitamin, and lifestyle factors, in hopes of being as healthy as I possibly can be!
And now that I can see, I’m hoping to start blogging more regularly again. What do you want to hear about? Wanna see my summer meal plan? (Spoiler alert: BLT’s are on there A LOT!) Want to hear all of X’s new hilarious phrases? How about his version of worship songs? He sings them constantly. In the car, in the grocery store, and he gets the lyrics right most of time.
But, as I wrap things up this morning, here’s my favorite mis-quoted song.
“Forever, Arthur of the vation. Our God is mighty and brave. He is mighty and brave.”
Have a great week, friends!